I’ve been diagnosed with Crohns Disease… Now what?

You have Crohns Disease.”

It may as well have been a life sentence. Now I know the news could have been so much worse, but I was devastated.

About 5 years ago, a friend of a friend had been going through a rough time with their health. Stomach cramps, loss of blood, weight loss, tiredness etc. All the same symptoms I had. They then received a diagnosis. Crohns Disease.

I felt cheated. Not for the fact they had Crohns and I didn’t, but because they had been able to be diagnosed. We shared the same symptoms. I had mine for so much longer than they did, but yet I was still in the dark as to why my body hated me so much.

3 years later, I got my diagnosis. I can still remember her face when she told me. All smiley and happy. If I’m honest, I wanted to punch her. She had just given me devastating news and she was smiling? The only thing rushing through my head was, “Ok so when am I going to need a colostomy bag? When is the first operation? Is it something I had done?

Before I could ask any questions, I was ushered out of the room.

Ok, so now what?

I wasn’t given any advice of how I can help myself, what diet I would need to be on, what I could and couldn’t eat. Just left with the fact I had Crohns and it wasn’t going to go away. I didn’t know where to look for information, my husband tried his best to support me, but if we didn’t have any information about Crohns, how could we go about doing anything to help it?

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I signed up to Crohns and Colitis UK, and they gave me all the information I needed. They told me what Crohns was, how it affects the body and what can be expected in the years to come. This helped me massively, to know what it was and how I could go about helping myself helped me to learn to deal with it.

I wasn’t put on any form of medication for the following 8 months as they thought my case was very mild, then 8 months later, it all took a turn for the worst…

More to follow

Words by Jack Sawyer

 

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Author: SawyerEsq.

24. IBD Warrior.

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